In collaboration with Radboud University Medical Center, Radboud University and ParkinsonNet, we are conducting a multi-year study in the Netherlands to explore many factors that may impact the course of Parkinson’s disease. The study design has been published in BMC Neurology. Our vision is to identify new biological markers that will allow us to track the progression of the disease more sensitively and potentially provide a foundation for new and more personalized treatments.
ParkinsonNet is comprised of 3,000 medical and allied health professionals treating all people with Parkinson’s disease in the Netherlands. This network provides unique access to comprehensive daily data. With this information, the team can aggregate multiple data points from a nationally representative cohort to identify patterns that affect the progression of the disease in a methodical and robust way.
This study is pioneering a privacy method called polymorphic encryption and pseudonymization (PEP), developed by renowned digital security experts Professors Bart Jacobs and Eric Verheul of the Digital Security Group at the Institute for Computing and Information Sciences at Radboud University.
The study will use sophisticated molecular analyses, advanced brain imaging, and wearable devices with sensors capable of measuring various types of data in the home, such as vital signs and activity levels, making it possible to perform in-depth analysis and characterization of the disease.